Assistive Technology

ataccess.org
Alliance for Technology Access

lekotek.org
Accessible Toys for Children with Disabilities

ablegeneration.com
Information on assistive technology and devices.

Autism 

autismspeaks.org
An organization dedicated to increasing awareness of autism spectrum disorders, the funding research into the causes, prevention, and treatments for autism.

mchlibrary.info/KnowledgePaths/kp_autism.html
offers a selection of current, high-quality resources about ASD identification and intervention which has been compiled by the Maternal and Child Health (MCH) Library at Georgetown University.

autismsocietyofct.org
Information to serve, support and advocate for persons with Autism spectrum disorders, their families and communities.

talkautism.org
TalkAutism is a communication service shared by many organizations who share a common database of resource directories, distance learning library, and special message boards to help you find resources related to autism. 

ctautism.org
CARE Alliance- a Connecticut based non-profit organization dedicated to improving the lives of children diagnosed with autism.

ct-asrc.org
Connecticut Autism Spectrum Resource Center- provides educational advocacy, support, information, and a comprehensive training series for both parents and professionals

autism-info.com
 "Autism Resources" - has many links to other sites; well organized and informative

info.med.yale.edu/chldstdy/autism
 "Yale Child Study Center"

ctfeat.org
Connecticut Families for Effective Autism Treatment (CT FEAT)

autism.org  
Autism Center in Portland, Oregon - variety of information on autism and related topics

udel.edu/bkirby/asperger  
- Asperger’s Syndrome Information

autism-society.org/site/PageServer
- Autism Society of America

nectac.org/topics/autism/autism.asp
Information on Autism Spectrum Disorders

Child Development

iamyourchild.org 
I Am Your Child Campaign- information on brain development

zerotothree.org
Information on child development & resources on issues ranging from breast feeding to safety

naeyc.org
Promotes the education of young children

greatkidsct.org
Website for parents- provides information on parenting, education, health and safety.

aspe.hhs.gov
Health and Human Services website, includes policy on children and youth; has publication on choosing quality child care.

ed.gov/parents/landing.jhtml?src=pn
US Department of Education website containing information on school readiness, academic success and services for a child with special needs.

www.chdi.org
A partnership between the University of Connecticut and Yale University whose goal is to improve health outcomes for Connecticut's children.  Has information on issues like sleep, nutrition, oral health, safety and common health problems.

Deaf or Hard of Hearing

ct.gov/dph/cwp/view.asp?a=3138&q=387718&dphNav_GID=1601
Early hearing detection and intervention information from the Connecticut Department of Public Health

cdc.gov/ncbddd
Educational materials concerning early hearing loss detection and intervention.

ed.gov/about/offices/list/osers/products/opening_doors/index.html
Information and resources in a publication produced for the Office of Special Education and Rehabilitative Services (OSERS) by the Academy for Educational Development (AED). Opening Doors: Technology and Communication Options for Children with Hearing Loss provides background on early intervention, the use of technology and other support available to children and their families.

state.ct.us/cdhi/index.htm
Commission on Deaf & Hearing Impaired (State of Connecticut)- provides information on services for persons who are deaf or hard of hearing

oraldeafed.org
Oral Deaf Education Library (describes the technology available today through hearing aids and cochlear implants).

lhh.org
Early Identification of Hearing Loss in Infants - Statistics about prevalence of deafness in the population, recommended age for screening, use of modern technology and consequences of delay in diagnosis. (/earlyid/index.htm)

agbell.org
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is an  international membership organization comprised of parents of children who are deaf and hard of hearing, adults with hearing loss, and professionals who serve children with hearing loss. 

agbellct.org
Connecticut chapter of the AG Bell Association.

babyhearing.org
Provides information for parents about newborn hearing screening, hearing loss, hearing aids, cochlear implants, etc.

tr.wou.edu/dblink
National information clearinghouse on children who are deaf-blind.  This is a federally funded information and referral serviced established to collect, develop and distribute information to help improve the education and lives of children and youth who are deaf-blind, ages birth to 21.

Family Advocacy and Support

pathct.org
PATH (Parents Available to Help) Parent to Parent of Connecticut - support for families

eifamilyalliance.org
The Early Intervention Family Alliance is a national group of family leaders dedicated to improving outcomes for infants and toddlers with disabilities and their families.

familyvoices.org
Family Voices-a national grassroots network of families & friends speaking on behalf of children with special health care needs

php.com
Parents helping Parents

our-kids.org
Our Kids

npnd.org
National parent network on disabilities

cpacinc.org
Connecticut Parent Advocacy Center (CPAC)- information, training & support for parents of infants, children & youth with disabilities

stompproject.org
STOMP is the only National Parent Training and Information Center for military families providing support and advice to military parents irregardless of the type of medical condition their child has

usdoj.gov/crt/ada/childq%26a.htm
Commonly asked questions abut child care centers and the American's with Disabilities Act

General Disabilities-Resources & Information

familyvillage.wisc.edu/index.htmlx
The Family Village- a global community of disability related resources

nichcy.org
National Information Center for Children & Youth with Disabilities

nectac.org
National Early Childhood Technical Assistance Center- consortium to support & improve services for young children with disabilities and their families

specialchild.com/RFCC/
The Resource Foundation for Children with Challenges- for parents of children with disabilities; matches parents with other parents of children with similar issues.

eparent.com
Exceptional Parent Magazine's on-line resource for parents of children with disabilities.

infoline.org
2-1-1: Connecticut's information & referral line- provides information on a variety of resources available in CT- including basic needs, respite, support programs, childcare, healthcare, etc.

ctrespite.org
A web-based clearinghouse for respite resources in Connecticut.

researchtopractice.info/products.php#bottomlines
"Bottomlines" from the O.H. Puckett Institute:  1-2 page summaries for parents and practitioners on practices used with young children with disabilities.  Research is reviewed and conclusions are offered to either support the practice or not.

Health Care (Includes Maternal & Child Health)

www2a.cdc.gov/nip/kidstuff/newscheduler_le/
On-line tool to create a "custom" immunization schedule for children 5 years of age and younger.

aap.org
American Academy of Pediatrics

ddhealthinfo.org
Especially for physicians and health care providers- provides current clinical information about caring for persons with developmental disabilities; includes opportunity for physician to physician consultation.

dbpeds.org
Developmental-Behavioral Pediatrics Online Community

brightfutures.org
Promoting and improving the health, education and well-being of children and adolescents, ages 0-21, and their families.

ncemch.org
National Center for Education in Maternal & Child Health

childrenshospitals.net/
National Association for Children's Hospitals & Related Institutions

ask.hrsa.gov/
Maternal & Child Health Clearinghouse

health.gov/nhic/
National Health Information Center

hmhb.org/
National Healthy Mothers/ Healthy Babies Coalition

medlineplus.gov
Information and resources related to health conditions, diseases and wellness.

IDEA

ideapractices.org
Answers questions abut IDEA

nectac.org/default.asp
The National Early Childhood Technical Assistance Center supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA).

Mental Health

nami.org
National Alliance for the Mentally Ill (NAMI)

nmha.org
National Mental Health Association

dmhas.state.ct.us/
State of Connecticut Department of Mental Health and Addiction Services

Feeding and Nutrition

aap.org
American Academy of Pediatrics This site includes two areas of interest: AAPs position on a range of issues, in language suitable for distribution to parents and a parents resource guide listing books, magazines and videos of interest to parents.  (Go to Policy Statements Education Resources Guide).

reflux.org
Provides information and support to parents, patients, and doctors about Gastroesophageal Reflux (GER).

kidsfood.org 
Connecticut Association of Human Service Agencies and Kaiser Permanente This site provides food activities for children, parents, and teachers.

bflrc.com/links.htm
Breastfeeding Website   lists nearly 100 organizations that support breastfeeding.

medela.com
Medela website   Information on Haberman feeders and S&S feeding systems and breast pumps.

cdc.gov/nchs/nhanes.htm
National Center for Health Statistics   (See Public Health Interests items Growth Chart). This site talks about the revised growth charts.

naspgn.org/
North American Society for Pediatric Gastroenterology, Hepatology and Nutrition   This site contains both patient and professional information. It also includes a list of over 20 organizations prepared to answer questions and supply information on various gastrointestinal conditions.

new-vis.com 
New Visions This site offers useful, practical information on feeding, oral-motor skills, and mealtimes as well as access to their catalog on oral motor, feeding, and mealtime programs.

usda.gov/cnpp
Tips for Using the Food Guide Pyramid for Young Children 2 to 6 years Old, a 16-page booklet that includes the adapted pyramid graphic and accompanying information on good nutrition for children. Available to the public on USDAs Center for Nutrition Policy and Promotion Internet home page or through the Government Printing Office by calling (202) 512-1800.

nal.usda.gov/fnic/Fpyr/pyramid.html
-to obtain food pyramids for different situations including various cultural groups, contact the USDAs web site.

Other Specific Disability Resources

afb.org
American Foundation for the Blind (AFB), a US nonprofit organization enabling blind or visually impaired people to achieve equality and access.

rfbd.org
Reading for the Blind and Dyslexic- recorded textbooks for students K-12.

besb.state.ct.us
Board of Education Services for the Blind; also provides information on their services for children.

nfb.org
National Federation of the Blind

tr.wou.edu/dblink
National information clearinghouse on children who are deaf-blind.  This is a federally funded information and referral serviced established to collect, develop and distribute information to help improve the education and lives of children and youth who are deaf-blind, ages birth to 21.

ndsccenter.org
National Down Syndrome Congress

ndss.org
National Down Syndrome Society

chadd.org
Children and Adults with Attention Deficit Disorder (CHADD)

nofas.org
National Organization on Fetal Alcohol Syndrome (NOFAS)

cacld.org
Connecticut Association for Children with Learning Disabilities

sbaa.org
Spina Bifida Association of America

littlehearts.net
Parent support for parents of children with congenital heart defects.

rsrf.org
The Rett Syndrome Research Foundation has a focused mission of promoting, accelerating, and funding biomedical research for the treatment and cure of RETT Syndrome. For more information, contact Monica Coenraads, VP of Research, at 203-445-9233 or e-mail at monicoen@aol.com.

chasa.org
Offers support and information for families of children who have hemiplegia, hemiparesis and/or pediatric stroke.

tsalliance.org
Tuberous Sclerosis Alliance- offers information and resources for families of infants and young children diagnosed with Tuberous Sclerosis- spiral bound resource guide for families is available.
 

Preemies

nlm.nih.gov/medlineplus/prematurebabies.html
Health information and statistics on a variety of topics, including babies born prematurely.

prematurity.org/
Volunteer website covering issues of preemie parenting and support from a family to family perspective.

marchofdimes.com/prematurity/index_about.asp
Information and statistics regarding premature births.

Rare Diseases, Disorders, Conditions

modimes.org
March of Dimes- information on pregnancy and birth defects

rarediseases.info.nih.gov/
Office of Rare Disesases (ORD); NORD & the National Human Genome Research Institute have a new Information Center available M-F 12pm-6pm @ 1-888-205-2311 or TTY 1-888-205-03223.

geneticalliance.org
Genetic Alliance-international coalition working to enhance the lives of everyone impacted by genetic conditions

raredisorders.com
A support e-group for families and others interested in sharing questions or information on specific rare diseases.

Special Education

ericec.org
ERIC Clearinghouse on Disabilities & Gifted Education Council for Exceptional Children (CEC)

Speech & Language

asha.org  
- the professional association for speech pathologists and audiologists

speechpathology.com
- contains links to a large number of related sites

nectac.org
- National Early Childhood Technical Assistance System

hanen.org 
- information and links on language development

apraxia-kids.org
Apraxia-Kids^SM Internet Resources - your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia.

State of Connecticut Resources

ct.gov
ConneCT- Official website for the State of Connecticut

state.ct.us/ctcdd
Connecticut Council on Developmental Disabilities

state.ct.us/opapd
Office of Protection and Advocacy for Persons with Disabilities

state.ct.us/cdhi/index.htm
State Commission on Deaf and Hearing Impaired

state.ct.us/dcf
State Department of Children and Families

ct.gov/dds
State Department of Developmental Services

state.ct.us/sde
State Department of Education

ct.gov/cid/site/default.asp
State Department of Insurance

dmhas.state.ct.us
State Department of Mental Health and Addiction Services

state.ct.us/dph
State Department of Public Health

dss.state.ct.us
State Department of Social Services

ctkidslink.org
Connecticut Kidslink- Voices for Children Website