Assistive Technology

http://www.techactproject.com
State of Connecticut Tech Act Project (CTTAP); includes Equipment Recycling and Loan Fund:  http://www.techact.uconn.edu/loan.html and New England Technology Exchange:  http://www.dinf.ne.jp/doc/english/Us_Eu/conf/csun_98/csun98_147.htm

http://www.ataccess.org
Alliance for Technology Access

http://www.lekotek.org
Accessible Toys for Children with Disabilities

http://www.ablegeneration.com
Information on assistive technology and devices.

Autism 

http://www.autismsocietyofct.org
Information to serve, support and advocate for persons with Autism spectrum disorders, their families and communities.

http://www.talkautism.org
TalkAutism is a communication service shared by many organizations who share a common database of resource directories, distance learning library, and special message boards to help you find resources related to autism. 

http://www.ctautism.org
CARE Alliance- a Connecticut based non-profit organization dedicated to improving the lives of children diagnosed with autism.

http://www.ct-asrc.org
Connecticut Autism Spectrum Resource Center- provides educational advocacy, support, information, and a comprehensive training series for both parents and professionals

http://www.autism-info.com
 "Autism Resources" - has many links to other sites; well organized and informative

http://www.info.med.yale.edu/chldstdy/autism
 "Yale Child Study Center"

http://www.ctfeat.org
Connecticut Families for Effective Autism Treatment (CT FEAT)

http://www.autism.org  
Autism Center in Portland, Oregon - variety of information on autism and related topics

http://www.udel.edu/bkirby/asperger  
- Asperger’s Syndrome Information

http://www.autism-society.org/site/PageServer
- Autism Society of America

http://www.nectac.org/topics/autism/autism.asp
Information on Autism Spectrum Disorders

Child Development

http://www.iamyourchild.org 
I Am Your Child Campaign- information on brain development

http://www.zerotothree.org
Information on child development & resources on issues ranging from breast feeding to safety

http://www.naeyc.org
Promotes the education of young children

http://www.greatkidsct.org
Website for parents- provides information on parenting, education, health and safety.

http://aspe.hhs.gov/hsp/hspyoung.htm
Health and Human Services website, includes policy on children and youth; has publication on choosing quality child care.

http://www.ed.gov/parents/landing.jhtml?src=pn
US Department of Education website containing information on school readiness, academic success and services for a child with special needs.

http://www.chdi.org
A partnership between the University of Connecticut and Yale University whose goal is to improve health outcomes for Connecticut's children.  Has information on issues like sleep, nutrition, oral health, safety and common health problems.

Deaf or Hard of Hearing

http://www.ct.gov/dph/cwp/view.asp?a=3138&q=387718&dphNav_GID=1601
Early hearing detection and intervention information from the Connecticut Department of Public Health

http://www.cdc.gov/ncbddd
Educational materials concerning early hearing loss detection and intervention.

http://www.ed.gov/about/offices/list/osers/products/opening_doors/index.html
Information and resources in a publication produced for the Office of Special Education and Rehabilitative Services (OSERS) by the Academy for Educational Development (AED). Opening Doors: Technology and Communication Options for Children with Hearing Loss provides background on early intervention, the use of technology and other support available to children and their families.

http://www.state.ct.us/cdhi/index.htm
Commission on Deaf & Hearing Impaired (State of Connecticut)- provides information on services for persons who are deaf or hard of hearing

http://www.oraldeafed.org
Oral Deaf Education Library (describes the technology available today through hearing aids and cochlear implants).

http://www.hipmag.org/
HiPMag Online (HiP Magazine on Internet for deaf and hard-of-hearing kids and their pals).

http://www.shhh.org
What is the impact of deafness on young children? (/journal/newborn.htm)

http://www.entassociates.com/
Is my child deaf? How is deafness identified in a baby? (/baby.htm)

http://www.lhh.org
Early Identification of Hearing Loss in Infants - Statistics about prevalence of deafness in the population, recommended age for screening, use of modern technology and consequences of delay in diagnosis. (/earlyid/index.htm)

http://www.gohear.org
Where do I go from hear? This site explains how the various degrees of hearing loss actually sound to the deaf person, show you where common sounds fall on an audiogram and even take you on what they call an "animated tour inside the ear." Have a little fun while you are learning.

http://www.agbell.org
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is an  international membership organization comprised of parents of children who are deaf and hard of hearing, adults with hearing loss, and professionals who serve children with hearing loss. 

http://www.agbellct.org
Connecticut chapter of the AG Bell Association.

http://cici.org
Cochlear Implant Club International is a non-profit organization for cochlear implant recipients, their families, professionals, and other  individuals interested in cochlear implants.

http://www.babyhearing.org
Provides information for parents about newborn hearing screening, hearing loss, hearing aids, cochlear implants, etc.

http://www.tr.wou.edu/dblink
National information clearinghouse on children who are deaf-blind.  This is a federally funded information and referral serviced established to collect, develop and distribute information to help improve the education and lives of children and youth who are deaf-blind, ages birth to 21.

Family Advocacy and Support

http://www.pathct.org
PATH (Parents Available to Help) Parent to Parent of Connecticut - support for families

http://www.familyvoices.org
Family Voices-a national grassroots network of families & friends speaking on behalf of children with special health care needs

http://www.php.com
Parents helping Parents

http://www.our-kids.org
Our Kids

http://www.npnd.org
National parent network on disabilities

http://www.cpacinc.org
Connecticut Parent Advocacy Center (CPAC)- information, training & support for parents of infants, children & youth with disabilities

http://www.stompproject.org
STOMP is the only National Parent Training and Information Center for military families providing support and advice to military parents irregardless of the type of medical condition their child has

http://www.usdoj.gov/crt/ada/childq%26a.htm
Commonly asked questions abut child care centers and the American's with Disabilities Act

http://www.giclocalsupport.org/doc/kinship_care_2006_ct.pdf
Data on Connecticut grandparents raising their grandchildren and many of the resources available to support them

General Disabilities-Resources & Information

http://www.familyvillage.wisc.edu/index.htmlx
The Family Village- a global community of disability related resources

http://www.irsc.org
Internet Resources for Special Children

http://www.nichcy.org
National Information Center for Children & Youth with Disabilities

http://www.nectac.org
National Early Childhood Technical Assistance Center- consortium to support & improve services for young children with disabilities and their families

http://www.specialchild.com/RFCC/
The Resource Foundation for Children with Challenges- for parents of children with disabilities; matches parents with other parents of children with similar issues.

http://www.eparent.com
Exceptional Parent Magazine's on-line resource for parents of children with disabilities.

http://www.infoline.org
2-1-1: Connecticut's information & referral line- provides information on a variety of resources available in CT- including basic needs, respite, support programs, childcare, healthcare, etc.

http://www.respiteresource.com
A web-based clearinghouse for respite resources in Connecticut.

http://www.researchtopractice.info/products.php#bottomlines
"Bottomlines" from the O.H. Puckett Institute:  1-2 page summaries for parents and practitioners on practices used with young children with disabilities.  Research is reviewed and conclusions are offered to either support the practice or not.

Health Care (Includes Maternal & Child Health)

http://www2a.cdc.gov/nip/scheduler_le/default.asp
On-line tool to create a "custom" immunization schedule for children 5 years of age and younger.

http://www.aap.org
American Academy of Pediatrics

http://www.ddhealthinfo.org
Especially for physicians and health care providers- provides current clinical information about caring for persons with developmental disabilities; includes opportunity for physician to physician consultation.

http://www.dbpeds.org
Developmental-Behavioral Pediatrics Online Community

http://www.brightfutures.org
Promoting and improving the health, education and well-being of children and adolescents, ages 0-21, and their families.

http://www.ncemch.org
National Center for Education in Maternal & Child Health

http://www.childrenshospitals.net/
National Association for Children's Hospitals & Related Institutions

http://www.ask.hrsa.gov/
Maternal & Child Health Clearinghouse

http://www.health.gov/nhic/
National Health Information Center

http://www.hmhb.org/
National Healthy Mothers/ Healthy Babies Coalition

http://www.medlineplus.gov
Information and resources related to health conditions, diseases and wellness.

IDEA

http://www.ideapractices.org
Answers questions abut IDEA

http://www.nectac.org/default.asp
The National Early Childhood Technical Assistance Center supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA).

Mental Health

http://www.nami.org
National Alliance for the Mentally Ill (NAMI)

http://www.nmha.org
National Mental Health Association

http://www.dmhas.state.ct.us/
State of Connecticut Department of Mental Health and Addiction Services

Feeding and Nutrition

http://www.aap.org
American Academy of Pediatrics This site includes two areas of interest: AAP’s position on a range of issues, in language suitable for distribution to parents and a parent’s resource guide listing books, magazines and videos of interest to parents.  (Go to Policy Statements – Education Resources Guide).

http://www.reflux.org
Provides information and support to parents, patients, and doctors about Gastroesophageal Reflux (GER).

http://kidsfood.org 
Connecticut Association of Human Service Agencies and Kaiser Permanente – This site provides food activities for children, parents, and teachers.

http://www.bflrc.com/links.htm
Breastfeeding Website –  lists nearly 100 organizations that support breastfeeding.

http://www.healthtouch.com
Healthtouch – This site contains parent/patient counseling materials on a number of nutrition related topics, including: "Facts About Feeding Your Baby"; "Feeding Newborns"; and "When Should Babies Eat Solid Food?" (Click on "Health Information"). The American Dietetic Association has authored much of the material at this site.

http://www.medela.com
Medela website –  Information on Haberman feeders and S&S feeding systems and breast pumps.

http://www.cdc.gov/nchs/nhanes.htm
National Center for Health Statistics –  (See Public Health Interests items – Growth Chart). This site talks about the revised growth charts.

http://www.naspgn.org/
North American Society for Pediatric Gastroenterology, Hepatology and Nutrition –  This site contains both patient and professional information. It also includes a list of over 20 organizations prepared to answer questions and supply information on various gastrointestinal conditions.

http://www.new-vis.com 
New Visions –This site offers useful, practical information on feeding, oral-motor skills, and mealtimes as well as access to their catalog on oral motor, feeding, and mealtime programs.

http://www.usda.gov/cnpp
Tips for Using the Food Guide Pyramid for Young Children 2 to 6 years Old, a 16-page booklet that includes the adapted pyramid graphic and accompanying information on good nutrition for children. Available to the public on USDA’s Center for Nutrition Policy and Promotion Internet home page or through the Government Printing Office by calling (202) 512-1800.

http://www.nal.usda.gov/fnic/Fpyr/pyramid.html
-to obtain food pyramids for different situations including various cultural groups, contact the USDA’s web site.

Other Specific Disability Resources

http://www.afb.org
American Foundation for the Blind (AFB), a US nonprofit organization enabling blind or visually impaired people to achieve equality and access.

http://www.rfbd.org
Reading for the Blind and Dyslexic- recorded textbooks for students K-12.

http://www.besb.state.ct.us
Board of Education Services for the Blind; also provides information on their services for children.

http://www.nfb.org
National Federation of the Blind

http://www.tr.wou.edu/dblink
National information clearinghouse on children who are deaf-blind.  This is a federally funded information and referral serviced established to collect, develop and distribute information to help improve the education and lives of children and youth who are deaf-blind, ages birth to 21.

http://www.ndsccenter.org
National Down Syndrome Congress

http://www.ndss.org
National Down Syndrome Society

http://www.chadd.org
Children and Adults with Attention Deficit Disorder (CHADD)

http://www.nofas.org
National Organization on Fetal Alcohol Syndrome (NOFAS)

http://www.cacld.org
Connecticut Association for Children with Learning Disabilities

http://www.sbaa.org
Spina Bifida Association of America

http://www.littlehearts.net
Parent support for parents of children with congenital heart defects.

http://www.rsrf.org
The Rett Syndrome Research Foundation has a focused mission of promoting, accelerating, and funding biomedical research for the treatment and cure of RETT Syndrome. For more information, contact Monica Coenraads, VP of Research, at 203-445-9233 or e-mail at monicoen@aol.com.

http://www.chasa.org
Offers support and information for families of children who have hemiplegia, hemiparesis and/or pediatric stroke.

http://www.tsalliance.org
Tuberous Sclerosis Alliance- offers information and resources for families of infants and young children diagnosed with Tuberous Sclerosis- spiral bound resource guide for families is available.
 

Preemies

http://www.nlm.nih.gov/medlineplus/prematurebabies.html
Health information and statistics on a variety of topics, including babies born prematurely.

http://www.prematurity.org/
Volunteer website covering issues of preemie parenting and support from a family to family perspective.

http://www.marchofdimes.com/prematurity/index_about.asp
Information and statistics regarding premature births.

Rare Diseases, Disorders, Conditions

http://www.modimes.org
March of Dimes- information on pregnancy and birth defects

http://rarediseases.info.nih.gov/
Office of Rare Disesases (ORD); NORD & the National Human Genome Research Institute have a new Information Center available M-F 12pm-6pm @ 1-888-205-2311 or TTY 1-888-205-03223.

http://www.geneticalliance.org
Genetic Alliance-international coalition working to enhance the lives of everyone impacted by genetic conditions

http://www.raredisorders.com
A support e-group for families and others interested in sharing questions or information on specific rare diseases.

Special Education

http://ericec.org
ERIC Clearinghouse on Disabilities & Gifted Education Council for Exceptional Children (CEC)

Speech & Language

http://www.asha.org  
- the professional association for speech pathologists and audiologists

http://www.speechpathology.com
- contains links to a large number of related sites

http://nectac.org
- National Early Childhood Technical Assistance System

http://www.hanen.org 
- information and links on language development

http://www.apraxia-kids.org
Apraxia-Kids^SM Internet Resources - your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia.

State of Connecticut Resources

http://www.state.ct.us/index.asp
ConneCT- Official website for the State of Connecticut

http://www.state.ct.us/ctcdd
Connecticut Council on Developmental Disabilities

http://www.state.ct.us/opapd
Office of Protection and Advocacy for Persons with Disabilities

http://www.state.ct.us/cdhi/index.htm
State Commission on Deaf and Hearing Impaired

http://www.state.ct.us/dcf
State Department of Children and Families

http://www.ct.gov/dds
State Department of Developmental Services

http://www.state.ct.us/sde
State Department of Education

http://www.state.ct.us/cid
State Department of Insurance

http://www.dmhas.state.ct.us
State Department of Mental Health and Addiction Services

http://www.state.ct.us/dph
State Department of Public Health

http://www.dss.state.ct.us
State Department of Social Services

http://www.ctkidslink.org
Connecticut Kidslink- Voices for Children Website