Rare Diseases and Conditions
rarediseases.org National Organization for Rare Disorders (NORD)
rarediseases.info.nih.gov/ Office of Rare Disesases (ORD); NORD & the National Human Genome Research Institute have a new Information Center available M-F 12pm-6pm @ 1-888-205-2311 or TTY 1-888-205-0323.
geneticalliance.org Genetic Alliance-international coalition working to enhance the lives of everyone impacted by genetic conditions
raredisorders.com A support e-group for families and others interested in sharing questions or information on specific rare diseases.
Last updated on 4/1/10