Rare Diseases and Conditions

rarediseases.org National Organization for Rare Disorders (NORD)

rarediseases.info.nih.gov/ Office of Rare Disesases (ORD); NORD & the National Human Genome Research Institute have a new Information Center available M-F 12pm-6pm @ 1-888-205-2311 or TTY 1-888-205-0323.

geneticalliance.org Genetic Alliance-international coalition working to enhance the lives of everyone impacted by genetic conditions